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Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
Making Research Accessible to the Developmental Language Disorder Community: A Mixed Methods Study Using the Nominal
Emily Jackson1, Janice Wijaya1, Sanjana Bhatoolaul1
1School of Allied Health, Curtin University, Perth, Australia.
Individuals with developmental language disorder (DLD) and their support networks prefer plain language summaries, flyers, infographics, and videos for research access. This study provides community-driven recommendations for accessible scientific dissemination.
Area of Science:
- Linguistics
- Developmental Psychology
- Health Communication
Background:
- Accessing scientific research is challenging for individuals with developmental language disorder (DLD) and their support networks due to complex language and cost barriers.
- Effective dissemination of DLD research is crucial for community involvement and knowledge building.
- No prior studies have investigated the DLD community's preferences for accessing and understanding research.
Purpose of the Study:
- To explore the DLD community's perspectives on how researchers can enhance the accessibility of their findings.
- To identify preferred formats and strategies for disseminating DLD research to the affected community and their support systems.
Main Methods:
- A mixed-methods approach was employed, including a nominal group technique with parents of children with DLD and a speech-language therapist (n=9).
- Participants ranked preferred methods for research dissemination, followed by in-depth qualitative content analysis of discussions on research accessibility.
Main Results:
- Preferred formats for accessible research dissemination included plain language summaries, flyers, infographics, and short videos.
- Key recommendations for researchers encompass text-based, static visual, and dynamic multimedia approaches.
- Adjusting language complexity and involving the DLD community in dissemination were highlighted as crucial strategies.
Conclusions:
- This study offers valuable insights into the DLD community's needs for research accessibility, enabling more effective dissemination.
- Implementing these community-informed strategies can empower the DLD community and foster greater engagement with research.
- Improved accessibility of DLD research findings can lead to better understanding and translation of knowledge within the community.
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