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Public contributors meaningfully shape cancer research by sharing lived experiences. Early involvement and strong relationships enhance impact, though more opportunities are desired for diverse engagement throughout projects.

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Area of Science:

  • Oncology
  • Health Services Research
  • Patient and Public Involvement (PPI)

Background:

  • Public contributors with cancer experience participated in optimizing diagnostic pathways for suspected cancer patients.
  • Involvement spanned project design, analysis, and dissemination alongside research and clinical teams.
  • Meaningful public involvement in cancer research requires further understanding of effective practices.

Purpose of the Study:

  • To evaluate the public involvement process within two cancer research projects.
  • To assess the effectiveness and nature of collaboration between public contributors and research teams.

Main Methods:

  • Collaborative evaluation involving research teams and public contributors.
  • Photovoice methodology used by public contributors to document their involvement experiences.
  • Analysis using a 4-dimensional framework and photo-narrative interpretation to capture contributor perspectives.

Main Results:

  • Public contributors reported strong voices and that their feedback was largely implemented.
  • Discussions centered on relevant topics, but involvement opportunities were primarily research-team-driven.
  • Photovoice narratives illustrated an evolution of contributor confidence and satisfaction.

Conclusions:

  • Public contributors can be meaningfully involved throughout cancer research lifecycles.
  • Strong relationships and trust are crucial for impactful public involvement.
  • Involving public contributors earlier, from the funding stage, can enhance research shaping and diversity of engagement.