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Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
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Validating a codesigned paediatric patient reported experience measure: a study protocol.

Karlen R Barr1,2, Jessica Nikolovski3,4, James R John1,5

  • 1Academic Unit of Infant, Child and Adolescent Psychiatry, South Western Sydney Local Health District, Liverpool, New South Wales, Australia.

BMJ Paediatrics Open
|July 30, 2025
PubMed
Summary
This summary is machine-generated.

A new patient reported experience measure (pPREM) is being validated for children in Australian hospitals. This tool ensures children's voices are heard in their healthcare experiences.

Keywords:
Child HealthPatient Rights

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Area of Science:

  • Pediatric healthcare research
  • Patient experience measurement
  • Health services research

Background:

  • Patient reported experience measures (PREMs) are crucial for incorporating patient perspectives into healthcare.
  • Children have a right to participate in decisions regarding their care.
  • Currently, no validated, standardized pediatric PREM (pPREM) exists for Australian healthcare settings, and existing tools are often not co-designed with children.

Purpose of the Study:

  • To validate a new pediatric patient reported experience measure (pPREM) for use in Australian healthcare settings.
  • To ensure children's voices are included in healthcare provision.
  • To develop a self-reported, locally validated, and standardized pPREM.

Main Methods:

  • The study involves cognitive interviews with up to 25 children (aged 6-11) who have had a recent hospital admission.
  • Population testing with approximately 180 children across six Australian hospitals to assess validity, reliability, and feasibility.
  • Implementation process evaluation through interviews with 25-30 healthcare stakeholders.

Main Results:

  • The study is currently in the validation phase, with results pending.
  • Cognitive interviews will inform the refinement of pPREM items.
  • Population testing will provide data on the pPREM's psychometric properties and feasibility.

Conclusions:

  • Validation of a new pPREM is essential for improving pediatric patient experience in Australia.
  • The developed pPREM aims to be child-centered and suitable for routine clinical use.
  • Findings will contribute to enhancing patient-centered care for children in Australian hospitals.