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Four Key Questions to Guide Human Rights-based Social Listening during Infodemics
Lisa Forman1,2
1Human Rights and Global Health Equity, Dalla Lana School of Public Health, University of Toronto, Toronto, Canada.
Asian Bioethics Review
|July 31, 2025
Summary
Human rights can guide ethical social listening to combat health infodemics. This approach ensures privacy and free speech while creating effective public health tools.
Area of Science:
- Public Health
- Human Rights Law
- Digital Ethics
Background:
- Infodemics, or the rapid spread of misinformation during health crises like COVID-19, pose significant public health challenges.
- Social listening tools are increasingly used to monitor and counter infodemics, but raise human rights concerns.
- Existing frameworks often lack specific guidance on ethically deploying social listening in public health.
Purpose of the Study:
- To explore a human rights-based approach to social listening for countering infodemics.
- To examine the intersection of social listening, infodemics, and human rights (health, life, free speech, privacy).
- To propose ethical guardrails and principles for rights-compliant social listening in public health.
Main Methods:
- Analysis of human rights law principles related to health, life, free speech, and privacy.
- Case study application using COVID-19 infodemics as a primary example.
- Development of a framework with key questions to guide rights-based social listening.
Main Results:
- Human rights frameworks can provide essential guardrails against unethical social listening practices.
- A rights-based approach can enhance the equity, ethics, and effectiveness of social listening as a public health tool.
- Four critical questions are proposed to frame the ethical considerations of social listening: Why, How, Who, and What outcomes.
Conclusions:
- Integrating human rights principles is crucial for the ethical and effective use of social listening in public health.
- Social listening, when rights-compliant, can be a powerful tool for managing infodemics and protecting public well-being.
- Further research and policy development are needed to operationalize a human rights-based approach to social listening.
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