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Practical Approaches to Patient-Centered Care in Europe: Mixed Methods Study Developing a Conceptual Framework for

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Summary

This study defines patient centeredness in comprehensive cancer care networks (CCCNs), emphasizing patient empowerment and personalized care. The developed framework guides CCCNs in prioritizing patient needs for improved cancer treatment outcomes.

Keywords:
comprehensive cancer care networksoncologypatient centerednesspatient empowermentpatient engagement

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Area of Science:

  • Health Services Research
  • Oncology
  • Patient-Centered Care

Background:

  • Patient-centered care is a paradigm shift from traditional physician-centric models in healthcare.
  • Cancer care requires a patient-centered approach due to its complexity and emotional impact.
  • Comprehensive cancer care networks (CCCNs) offer a structured model for delivering personalized cancer care.

Purpose of the Study:

  • To establish a consistent definition and framework for patient centeredness within CCCNs.
  • To facilitate the integration of patient-centered approaches to enhance the quality of cancer care.
  • To develop actionable strategies for implementing patient-centered care in CCCNs.

Main Methods:

  • An umbrella review of generic and oncology-specific dimensions of patient centeredness was conducted.
  • Inductive category development was used for data analysis and synthesis.
  • A survey of 23 CCCN stakeholders and a focus group with patient representatives achieved consensus on the framework.

Main Results:

  • A definition and framework for patient centeredness in CCCNs were established with 96% agreement.
  • Patient centeredness in CCCNs prioritizes physical, emotional, social needs, and values.
  • The framework includes 8 dimensions: patient empowerment, engagement, individuality, therapeutic relationship, culture, holistic care, professional support, and care coordination.

Conclusions:

  • The study provides a comprehensive understanding of patient-centered care within European CCCNs.
  • The findings enhance the application of patient centeredness in cancer care and other healthcare settings.
  • The results support CCCNs in creating environments where patients feel heard, valued, and engaged in decisions.