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Summary

Including patient advocates in research training improves trainee communication, empathy, and understanding of research impact. This patient-centered approach enhances scientific training and its real-world relevance.

Keywords:
Clinical relevanceCommunity engagementEmpathy developmentLay communicationMedical educationPatient advocacyResearch educationTrainee engagement

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Area of Science:

  • Medical research training
  • Patient advocacy in science

Background:

  • Patient advocates offer unique perspectives to research.
  • Integrating patient advocates into training can enhance scientific understanding and empathy.

Purpose of the Study:

  • To assess the impact of patient advocate feedback on research trainees.
  • To evaluate improvements in trainees' communication, empathy, and understanding of research impact.

Main Methods:

  • An IRB-approved survey was administered to trainees after interacting with patient advocates.
  • Trainees self-assessed lay language use, empathy, and research impact understanding.
  • Binomial proportion and Fisher's exact tests were used for significance.

Main Results:

  • 80% of trainees completed the survey; most were under 30 and people of color.
  • Trainees reported increased empathy (75%) and better understanding of research significance (71.4%) after advocate interaction.
  • Most trainees desired advocates in future sessions but not for study design or analysis.

Conclusions:

  • Patient advocates enhance trainees' ability to communicate research in lay language and understand its clinical impact.
  • Incorporating patient advocates into radiation oncology training strengthens the connection between research and real-world application.
  • Future training should consider patient advocate involvement to foster patient-centered research.