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Related Experiment Video

Updated: Sep 12, 2025

E-Patient Counseling Trial E-PACO: Computer Based Education versus Nurse Counseling for Patients to Prepare for Colonoscopy
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Patient-Contributed Data and Medication Safety: A Study on Self-Reporting Behaviors Among Patients with Cancer.

Xinyue Mao1, Serena Chen1, Xiayuan Huang2

  • 1University of Michigan, School of Nursing, Ann Arbor, MI.

Studies in Health Technology and Informatics
|August 8, 2025
PubMed
Summary

Cancer patients are more likely to report medication safety issues at home when events disrupt daily life or seem severe. Improving system usability and clinician communication can enhance patient reporting and medication safety.

Keywords:
Patient-contributed datacancer patientshealth reportingmedication safetypatient engagementsystem usability

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Area of Science:

  • Oncology
  • Patient Safety
  • Health Outcomes Research

Background:

  • Medication safety events in cancer patients at home significantly impact health outcomes.
  • Patients encounter barriers in reporting these safety events to healthcare providers.
  • Effective reporting is essential for improving cancer care and patient safety.

Purpose of the Study:

  • To identify key factors influencing cancer patients' self-reporting behaviors of medication safety events.
  • To understand the patient perspective on barriers and facilitators to reporting.
  • To inform the design of patient-centered medication safety reporting systems.

Main Methods:

  • A mixed-methods approach was employed, combining survey and interview data.
  • Data were collected from 41 cancer patients (breast, lung, prostate, colorectal).
  • Logistic regression and thematic analysis were used to analyze the data.

Main Results:

  • Beliefs about medication and perceived system usability predicted reporting behavior (AUC=0.85).
  • Disruption to daily routines and perceived severity of events were key triggers for reporting.
  • System usability and clinician relationships influenced patients' willingness to report.

Conclusions:

  • User-friendly reporting systems and supportive communication are vital for enhancing patient engagement in medication safety.
  • Addressing patient-reported barriers can improve the collection of valuable safety data.
  • Findings offer insights for designing patient-centered systems to facilitate reporting and improve cancer care.