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Ethical Standards I01:25

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The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
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Implementation of a Patient Consent Management at a German Medical Data Integration Center.

Tobias Bronsch1,2, Michael Anywar1,2, Benjamin Kinast1,2

  • 1Institute for Medical Informatics and Statistics, Kiel University and University Hospital Schleswig-Holstein, Kiel, Germany.

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Summary

Patient consent enforcement in health information exchange is crucial for research. UKSH MeDIC integrates and enforces broad patient consents using international standards like openEHR and FHIR, enabling modular consent management.

Keywords:
Broad ConsentData IntegrationFHIR®Health Information ExchangeopenEHR

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Area of Science:

  • Health Informatics
  • Medical Information Systems
  • Patient Data Management

Background:

  • Health Information Exchange (HIE) is vital for research.
  • Effective patient consent enforcement is a critical requirement for HIE.
  • Existing systems often lack robust and flexible consent management.

Purpose of the Study:

  • To describe the integration and enforcement of patient consents within the UKSH MeDIC system.
  • To demonstrate a modular approach for handling diverse consent types and systems in HIE.
  • To ensure compliance and facilitate research using standardized health data.

Main Methods:

  • Implementation of broad patient consents at UKSH.
  • Integration of consent enforcement mechanisms within the UKSH MeDIC platform.
  • Adoption of international healthcare standards, including openEHR and FHIR®.
  • Development of a modular architecture to accommodate various consent types and external systems.

Main Results:

  • Successful integration of broad consents at UKSH.
  • Enforcement of patient consent policies within the MeDIC system.
  • Demonstrated interoperability using openEHR and FHIR® standards.
  • A flexible, modular framework for consent management is established.

Conclusions:

  • The UKSH MeDIC system effectively enforces patient consent for research.
  • A modular approach using international standards enhances HIE flexibility.
  • This model supports secure and compliant health information exchange.