Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Concept Videos

Intellectual Disability01:29

Intellectual Disability

159
Intellectual disability (ID) is a neurodevelopmental condition characterized by deficits in intellectual and adaptive functioning that manifest during the developmental period. This condition encompasses challenges in reasoning, memory, problem-solving, and learning, accompanied by impairments in everyday life skills, such as communication, self-care, and social interactions. Intellectual disability affects approximately 1% of the population in the United States, impacting an estimated 5...
159
Ethical Dilemmas II01:30

Ethical Dilemmas II

1.3K
Resolving an ethical dilemma in healthcare involves a systematic approach that considers every aspect of the issue, respecting both the patient's needs and values and the healthcare professional's ethical obligations. Here are potential steps to resolve an ethical dilemma:
1.3K
Decision Making01:20

Decision Making

231
Decision-making is a fundamental cognitive process that involves evaluating alternatives and selecting among them. This process can range from simple choices, such as deciding what to wear, to complex decisions, like choosing a major in college or a career path. The complexity of the decision often dictates the approach we use, which can be broadly categorized into two types: automatic and controlled decision-making.
Automatic decision-making is fast, intuitive, and relies on gut feelings...
231
Critical Thinking II01:25

Critical Thinking II

3.1K
Critical thinking is a cognitive process with several attributes. The attributes of critical thinking include the following:
3.1K
Decision Making: Traditional Method01:14

Decision Making: Traditional Method

4.1K
The process of hypothesis testing based on the traditional method includes calculating the critical value, testing the value of the test statistic using the sample data, and interpreting these values.
First, a specific claim about the population parameter is decided based on the research question and is stated in a simple form. Further, an opposing statement to this claim is also stated. These statements can act as null and alternative hypotheses, out of which a null hypothesis would be a...
4.1K
Ethical Issues01:27

Ethical Issues

1.2K
Nurses are essential in patient care, upholding the ethical principles of their profession and effectively navigating ethical dilemmas. Neglecting ethical issues can lead to inadequate patient care, compromised therapeutic relationships, and moral distress among healthcare workers.
Ethical Concerns in Healthcare:
1.2K

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Implementing an electronic health record workflow to identify parents with cancer and implications for supportive oncology care.

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer·2026
Same author

GOComm: A team-based communication intervention to improve clinicians' skills and distress tolerance in family meetings.

Journal of hospital medicine·2026
Same author

Monitoring Redeployment-Associated Burnout in Healthcare Workers: A Real-Time Approach Using Ecological Momentary Assessment.

Healthcare (Basel, Switzerland)·2025
Same author

An Innovative Trauma-Informed Care Curriculum for Nurse Practitioners.

Nurse educator·2025
Same author

Caring Connections: A Grounded Theory Study of the Grief and Bereavement Experiences of Children With Intellectual Disabilities.

Omega·2025
Same author

Clinical Assessment Tools for Dyspnea in People With Intellectual and Developmental Disabilities: A Review of Instruments.

Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association·2025
Same journal

Barriers perceived by palliative care fellowships in training physicians from diverse specialties.

Journal of pain and symptom management·2026
Same journal

Health Equity: Foundation of Serious Illness Care.

Journal of pain and symptom management·2026
Same journal

Coping with Breathlessness in Individuals with Lung Diseases: A Systematic Review and Meta-Synthesis.

Journal of pain and symptom management·2026
Same journal

Growing the Next Generation of Hospice and Palliative Medicine Researchers.

Journal of pain and symptom management·2026
Same journal

Topical Amitriptyline, Ketamine, and Lidocaine Cream for Neuropathic Pain Control in Pediatric Oncology Patients.

Journal of pain and symptom management·2026
Same journal

Perceived Stigma, Psychological Distress, and Symptom Burden in Decompensated Cirrhosis.

Journal of pain and symptom management·2026
See all related articles

Related Experiment Video

Updated: Sep 11, 2025

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
06:16

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Published on: June 6, 2020

3.8K

State Decision-Making Approaches in Seriously Ill People With Intellectual/Developmental Disability.

Matthew Castillo1, Arlen G Gaines2, Caitlyn M Moore3

  • 1Division of Geriatrics and Palliative Care Medicine, Department of Medicine (M.C., C.P.), New York-Presbyterian Queens, Weill Cornell Medical College, Flushing, New York.

Journal of Pain and Symptom Management
|August 15, 2025
PubMed
Summary
This summary is machine-generated.

Hospice and palliative care (HAPC) clinicians can improve advance care planning (ACP) for individuals with intellectual and developmental disabilities (IDD). Supported decision-making frameworks empower individuals with IDD, ensuring their autonomy and dignity during serious illness planning.

Keywords:
Advance care planningautonomyintellectual and developmental disabilityserious illnessshared decision-makingsupported decision-making

More Related Videos

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
14:32

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care

Published on: February 16, 2011

23.8K
Multimodal Protocol for Assessing Metacognition and Self-Regulation in Adults with Learning Difficulties
12:55

Multimodal Protocol for Assessing Metacognition and Self-Regulation in Adults with Learning Difficulties

Published on: September 27, 2020

8.5K

Related Experiment Videos

Last Updated: Sep 11, 2025

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
06:16

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Published on: June 6, 2020

3.8K
Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
14:32

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care

Published on: February 16, 2011

23.8K
Multimodal Protocol for Assessing Metacognition and Self-Regulation in Adults with Learning Difficulties
12:55

Multimodal Protocol for Assessing Metacognition and Self-Regulation in Adults with Learning Difficulties

Published on: September 27, 2020

8.5K

Area of Science:

  • Medical Ethics
  • Disability Studies
  • Palliative Care

Background:

  • Individuals with intellectual and developmental disabilities (IDD) require specialized support for serious illness planning.
  • Healthcare professionals often lack preparedness to address the unique needs of individuals with IDD in advance care planning (ACP).
  • Existing legal frameworks and historical inequities complicate ACP for individuals with IDD.

Purpose of the Study:

  • To illustrate practical ACP and supported decision-making strategies for individuals with IDD.
  • To examine state-specific legal requirements for healthcare decision-making for individuals with IDD.
  • To promote autonomy and dignity in serious illness planning for individuals with IDD.

Main Methods:

  • Case study presentation of an adult with Down syndrome (Mr. A).
  • Analysis of legal requirements for healthcare agents, capacity determination, and guardianship avoidance in Maryland, New York, and Pennsylvania.
  • Discussion of supported decision-making as an alternative to surrogate decision-making.

Main Results:

  • Supported decision-making is a rights-based approach that preserves autonomy for individuals with IDD.
  • Navigating diverse state legal landscapes is crucial for effective ACP.
  • Clinicians can implement practical strategies to facilitate inclusive serious illness discussions.

Conclusions:

  • Thoughtful ACP and supported decision-making enhance autonomy for individuals with IDD.
  • Hospice and palliative care (HAPC) clinicians play a vital role in ethical serious illness planning for this population.
  • Inclusive practices are essential across varied legal frameworks to support individuals with IDD.