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Innovating for imPACT: Pilot Study Evaluation of a Pediatric Palliative Care Transition of Care Telehealth
Danielle Altares Sarik1, Bianca Santamarina Lazo2, Karina A Gattamorta3
1Danielle Altares Sarik, PhD, APRN, CPNP-PC, FAAN , is director of Nursing Research and Evidence-Based Practice, Nicklaus Children's Hospital, Miami, FL.
Insights
A new telehealth program improved pediatric palliative care transitions. The imPACT program successfully served diverse children with complex conditions, reducing readmissions and emergency care needs.
Area of Science:
- Pediatric Palliative Care
- Health Services Research
- Telehealth Applications
Background:
- Complex medical conditions affect approximately 50,000 children annually in the US.
- A significant gap exists in end-of-life care services for these children.
- Transition of care programs are crucial for improving outcomes in pediatric palliative care.
Purpose of the Study:
- To evaluate the implementation and initial outcomes of a novel telehealth transition of care program.
- To assess the feasibility of the imPACT program in a diverse pediatric population.
- To identify early indicators of program success in managing pediatric palliative and end-of-life patients.
Main Methods:
- Retrospective review of patient data.
- Enrollment of 27 pediatric patients in the first year of the imPACT program.
- Analysis of readmission rates and emergency/urgent care utilization.
Main Results:
- The imPACT program successfully enrolled patients from diverse geographic and racial/ethnic backgrounds.
- 20% of enrolled patients experienced a readmission within the study period.
- 18% of enrolled patients utilized emergency or urgent care services.
Conclusions:
- The telehealth transition of care program (imPACT) was successfully implemented.
- The program demonstrated feasibility in serving a diverse pediatric population with complex conditions.
- Further research is warranted to optimize the program and its impact on patient outcomes.
Abstract:
Approximately 50,000 children die annually in the United States from complex medical conditions, yet only a fraction receive end-of-life services. This study aimed to evaluate the implementation of a novel telehealth transition of care program for pediatric palliative and end-of-life patients (imPACT). After retrospective review, a total of 27 patients were enrolled in the first year of the program, with 20% experiencing a readmission and 18% utilizing emergency/urgent care services. imPACT was successfully implemented in a geographically and racially/ethnically diverse population.
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