Innovating for imPACT: Pilot Study Evaluation of a Pediatric Palliative Care Transition of Care Telehealth

Danielle Altares Sarik1, Bianca Santamarina Lazo2, Karina A Gattamorta3

  • 1Danielle Altares Sarik, PhD, APRN, CPNP-PC, FAAN , is director of Nursing Research and Evidence-Based Practice, Nicklaus Children's Hospital, Miami, FL.

Insights

A new telehealth program improved pediatric palliative care transitions. The imPACT program successfully served diverse children with complex conditions, reducing readmissions and emergency care needs.

Area of Science:

  • Pediatric Palliative Care
  • Health Services Research
  • Telehealth Applications

Background:

  • Complex medical conditions affect approximately 50,000 children annually in the US.
  • A significant gap exists in end-of-life care services for these children.
  • Transition of care programs are crucial for improving outcomes in pediatric palliative care.

Purpose of the Study:

  • To evaluate the implementation and initial outcomes of a novel telehealth transition of care program.
  • To assess the feasibility of the imPACT program in a diverse pediatric population.
  • To identify early indicators of program success in managing pediatric palliative and end-of-life patients.

Main Methods:

  • Retrospective review of patient data.
  • Enrollment of 27 pediatric patients in the first year of the imPACT program.
  • Analysis of readmission rates and emergency/urgent care utilization.

Main Results:

  • The imPACT program successfully enrolled patients from diverse geographic and racial/ethnic backgrounds.
  • 20% of enrolled patients experienced a readmission within the study period.
  • 18% of enrolled patients utilized emergency or urgent care services.

Conclusions:

  • The telehealth transition of care program (imPACT) was successfully implemented.
  • The program demonstrated feasibility in serving a diverse pediatric population with complex conditions.
  • Further research is warranted to optimize the program and its impact on patient outcomes.

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