Support for patients with rheumatoid arthritis provided by care and welfare professionals in Japan: a cross-sectional...

This study aimed to evaluate the knowledge, experience, and challenges faced by care and welfare professionals in supporting patients with rheumatoid arthritis (RA) in Japan, and to identify issues related to coordination between medical and welfare services.

A nationwide questionnaire survey was conducted using stratified regional sampling. The target population included 1000 members each from the Japan Care Manager Association (JCMA) and the Japanese Association of Certified Social Workers (JASW). The survey assessed respondents' knowledge of RA, support experience, actual practices, views on interdisciplinary collaboration, and perceptions of patients' understanding of available systems.

Valid responses were obtained from 390 JCMA members and 330 JASW members. While basic knowledge of RA symptoms and disease course was common, awareness of RA-specific medications was limited, especially among JASW respondents. Many participants had little experience supporting RA patients. The reported challenges included insufficient information from physicians, a lack of structured information sharing, and underestimation of care needs in long-term care certification. Patients and families also showed limited understanding of healthcare and welfare systems.

The findings highlight the need for improved education, better interdisciplinary coordination, and enhanced information sharing. Comprehensive efforts are essential to ensure continuous, high-quality care for RA patients in community settings.