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Family Members' Psychosocial Support in Palliative Inpatient Care: A Cross-Sectional Study.
Anu Soikkeli-Jalonen1, Kaisa Mishina2, Johanna Saarinen-Nassar1
1Tampere University, Finland.
Family members find psychosocial support in specialist palliative care generally adequate. However, improving informational support is crucial for enhancing the family experience during end-of-life care.
Area of Science:
- Palliative Care
- Psychosocial Support
- Family Caregiver Studies
Background:
- Specialist palliative inpatient care aims to support patients and their families.
- Family members' experiences of psychosocial support are vital for holistic care.
- Existing research highlights variability in family support within palliative settings.
Purpose of the Study:
- To evaluate the quality of psychosocial support received by family members during specialist palliative inpatient care.
- To identify specific areas of strength and weakness in the support provided.
- To inform improvements in family-centered palliative care practices.
Main Methods:
- A cross-sectional study design was employed.
- The "Family Involvement Scale-Psychosocial Support in Palliative Inpatient Care" (FIS-PS-InPal) questionnaire was utilized.
- Data were collected from 171 family members across 16 specialized palliative care wards in Finland and analyzed using descriptive statistics.
Main Results:
- Family members generally rated their psychosocial support as close to ideal.
- Psycho-emotional support and support practices were perceived as the strongest aspects of care.
- Informational support was identified as the weakest area, with 19.9% reporting less support than desired.
Conclusions:
- Psychosocial support for families in specialist palliative care is largely adequate.
- There is a clear need to enhance the communication of information to family members.
- Continuous evaluation and tailored implementation of support strategies are essential for optimizing family well-being in palliative care.
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