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Evaluation Tools for Patient and Public Involvement (PPI) in Health Research: A Scoping Review
Signe Nissen1, Anne Wettergren Karlsson2, Birgitte Nørgaard3
1Hospital Lillebaelt, Region of Southern Denmark, Vejle, Denmark.
The Patient
|September 5, 2025
Summary
Patient and public involvement (PPI) evaluation tools in health research are often adapted or created for specific needs. Challenges include low researcher engagement and the need for better training for both researchers and PPI partners.
Area of Science:
- Health Services Research
- Public Health
- Research Methodology
Background:
- Patient and Public Involvement (PPI) is vital for research relevance and quality.
- Systematic evaluation of PPI is essential but lacks robust tools.
- Health research requires effective methods to assess PPI.
Purpose of the Study:
- Identify and map PPI evaluation tools used in health research.
- Describe outcomes associated with PPI evaluations.
- Understand current practices in assessing patient and public involvement.
Main Methods:
- Scoping review following PRISMA-ScR guidelines.
- Searched MEDLINE, Embase, CINAHL, and Scopus (2021-2024).
- Included studies evaluating PPI, regardless of tool validation.
Main Results:
- Thirty studies were included, revealing adapted or novel PPI evaluation tools.
- Positive personal outcomes for PPI partners (well-being, skills) were noted.
- Challenges include 'us vs them' dynamics and need for training.
Conclusions:
- PPI evaluation tools are frequently context-specific and adapted.
- Low researcher response rates and preparedness are key challenges.
- Enhanced training is crucial for effective PPI evaluation and collaboration.
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