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Changes in Medicare's Chronic Condition Files and Disparities in Dementia Identification
Rajesh Makineni1, Aaron Bloschichak1, Helena Temkin-Greener1
1Department of Public Health Sciences, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA.
Journal of the American Medical Directors Association
|September 6, 2025
Summary
The Chronic Condition Warehouse
Area of Science:
- Gerontology
- Public Health
- Health Services Research
Background:
- The Chronic Condition Warehouse (CCW) updated its Chronic Condition file from a 27-condition (CC27) to a 30-condition (CC30) version in 2022.
- The CC30 file introduced changes to dementia identification criteria, including a shortened look-back period and increased claim requirements.
- These modifications may impact the identification of dementia cases, particularly among vulnerable populations.
Purpose of the Study:
- To quantify the impact of the CC27 to CC30 transition on dementia identification across diverse demographic and geographic subgroups.
- To examine individual-level factors (race/ethnicity, dual status, age, gender) and area-level factors (provider shortages, social deprivation) associated with dementia identification discrepancies.
- To assess the effect of updated CCW data on Alzheimer's disease (AD) and Alzheimer's disease and related dementias (ADRD) case identification.
Main Methods:
- An observational study utilizing Medicare Beneficiary Summary Files (2018-2021) linked with publicly available data.
- Identification of beneficiaries with AD or ADRD using both CC27 and CC30 criteria.
- Logistic regression analysis to determine factors associated with disagreement in dementia identification between CC27 and CC30.
Main Results:
- The CC30 file identified only 70-72% of AD and ADRD cases previously identified by CC27, adding minimal new cases (0.04%).
- Discrepancies in dementia identification were significantly associated with patient and community characteristics.
- Asian and Hispanic beneficiaries, rural residents, and those in socioeconomically deprived areas showed higher odds of disagreement in ADRD identification.
Conclusions:
- The transition from CC27 to CC30 led to a reduction in identified AD and ADRD cases, disproportionately affecting specific subpopulations.
- These changes necessitate careful consideration by researchers and policymakers when interpreting dementia trends and developing care interventions.
- The findings highlight potential disparities in dementia identification due to data update modifications.
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