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Interstitial lung disease: multidisciplinary outpatient palliative care service
Mymy Tran1,2, Kah Yee Tham1,3, Susanne Webster1
1Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia.
BMJ Supportive & Palliative Care
|September 11, 2025
Summary
A new combined Interstitial Lung Disease (ILD) and Palliative Care (PC) clinic improves patient outcomes. The clinic offers early symptom management, advance care planning, and community support for ILD patients.
Area of Science:
- Pulmonology
- Palliative Care
- Healthcare Management
Background:
- Interstitial Lung Disease (ILD) often presents with significant symptom burden and requires specialized care.
- Early integration of palliative care (PC) can improve quality of life for patients with chronic and progressive conditions like ILD.
Purpose of the Study:
- To evaluate the referral patterns and clinical practice of a newly established combined ILD-PC clinic.
- To assess the impact of early palliative care integration on patients with Interstitial Lung Disease.
Main Methods:
- Retrospective review of consecutive patients referred to the ILD-PC clinic.
- Documentation of referral reasons, PC interventions, and clinical outcomes over 16 months.
Main Results:
- 36 patients with various ILD diagnoses were referred, primarily for symptom burden and advanced disease.
- Palliative care interventions included symptom management (60%), community service referrals (40%), and advance care planning (26%).
- Outcomes included symptom worsening (23%), lung function decline (40%), mortality (11%), and lung transplantation listing (6%).
Conclusions:
- The combined ILD-PC clinic facilitates a multidisciplinary, patient-centered approach.
- Early access to symptom management, community services, and advance care planning is crucial for ILD patients.
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