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Continuing Care01:25

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Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
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Community-Based Provider Concerns About Pediatric Hospice and Palliative Care.

Meaghann S Weaver1, Tej Chana2, Deborah Fisher3

  • 1St Jude Children's Research Hospital (M.S.W.), Memphis, Tenessee, USA.

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|September 17, 2025
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Summary

Pediatric hospice and palliative care clinicians are concerned about unmet needs, resource shortages, and maintaining core values. Addressing these issues is crucial to ensure quality care for children and families.

Keywords:
Pediatric hospicepediatric palliative carepediatrics

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Area of Science:

  • Pediatric Palliative Care
  • Hospice and Palliative Care
  • Healthcare Management

Background:

  • Community-based organizations are vital for pediatric hospice and palliative care.
  • Families frequently depend on these services for comprehensive care.
  • Understanding clinician perspectives is essential for service improvement.

Purpose of the Study:

  • To investigate the unique concerns of clinicians providing pediatric hospice and palliative care.
  • To identify specific challenges faced by field-based professionals in the US.
  • To inform strategies for enhancing pediatric end-of-life care.

Main Methods:

  • A survey was distributed to members of the National Alliance for Care at Home (the Alliance).
  • Responses to a free-text question about pediatric care concerns were analyzed.
  • Semantic content analysis was employed to interpret qualitative data.

Main Results:

  • 31% of 295 respondents shared concerns about pediatric palliative and hospice care.
  • The primary worry for 53% of respondents was "unmet needs".
  • Other key concerns included resource limitations, staffing issues, training gaps, emotional burden, policy ambiguity, and community stigma.

Conclusions:

  • Clinicians' concerns highlight a tension between practical realities and the core philosophy of hospice and palliative care.
  • There is a risk of core values like equity and quality being compromised.
  • Coordinated research and engagement are needed to address these challenges proactively.