Assessing Caregiver Experiences Using Hip Spica Casts in Children Treated for Developmental Dysplasia of the Hip

Current literature lacks comprehensive documentation on the burden placed on patient families managing spica casts for extended periods. Various complications associated with spica casts further intensify these challenges. To address this gap, our study aims to assess the lived experiences of families caring for children undergoing treatment for developmental dysplasia of the hip (DDH) with a hip spica cast.

A comprehensive survey was designed to gather caregiver perspectives on various orthotic treatments for DDH. The survey consisted of both Likert statements and open-ended questions to provide a holistic understanding of caregiver experiences. This anonymous survey was distributed online through REDCap to the Global Hip Dysplasia Registry (GHDR) network, reaching participants through mailing lists, social media groups, and clinic visits at the authors' respective institutions. Targeting an international audience, the survey engaged parents and caregivers of pediatric patients treated with different orthoses, including harnesses, braces, and spica casts. The lived experiences of families managing hip spica casts were analyzed as a distinct subset of the broader data set.

A total of 140 respondents reported experience with a spica cast. Caregivers consistently reported concerns about restrictions on outings and daily activities while their child wore the spica cast. Hygiene issues, such as challenges with bathing and keeping the cast clean without getting it wet, were also prevalent. In addition, caregivers faced difficulties with cuddling and holding their children, although they emphasized that bonding remained intact. Many caregivers expressed feeling inadequately informed about spica casts, underscoring the need for improved education and support.

While hip spica casts were acknowledged as an effective treatment for postsurgical DDH, caregivers expressed overall dissatisfaction due to challenges related to convenience, hygiene, bonding, and other daily caregiving difficulties.

Understanding the lived experiences of families caring for children undergoing treatment for DDH with a hip spica cast can illuminate challenges and inform strategies for improved patient care and support. The findings from this investigation provide valuable insights that will be instrumental in refining the design of hip spica casts and enhancing education and support for caregivers, ultimately shaping future advancements in the treatment of DDH.