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  1. Home
  3. Occupation-based Collaborator Engagement In Research: Developing A Cerebral Palsy Task Force.
  1. Home
  3. Occupation-based Collaborator Engagement In Research: Developing A Cerebral Palsy Task Force.

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Occupation-Based Collaborator Engagement in Research: Developing a Cerebral Palsy Task Force.

Angela Shierk1,2, Nancy Clegg1, Daralyn Fulton1

  • 1Scottish Rite for Children, Dallas, TX, USA.

OTJR : Occupation, Participation and Health
|September 28, 2025

View abstract on PubMed

Summary
This summary is machine-generated.

Engaging community collaborators in research for cerebral palsy (CP) is vital. An occupation-based approach fostered high satisfaction and engagement within a CP Task Force, improving collaborative research efforts.

Keywords:
cerebral palsycommunity participationengagement

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Area of Science:

  • Health Services Research
  • Rehabilitation Science
  • Community-Based Participatory Research

Background:

  • Effective community collaboration is essential for improving healthcare outcomes, particularly for individuals with cerebral palsy (CP).
  • Challenges exist in achieving meaningful multi-collaborator involvement in research settings.
  • Patient-centered comparative clinical effectiveness research requires robust community partnerships.

Purpose of the Study:

  • To employ an occupation-based approach for engaging community collaborators in developing a CP Task Force.
  • To initiate patient-centered comparative clinical effectiveness research for CP.
  • To evaluate CP Task Force members' perspectives on their roles and experiences.

Main Methods:

  • A repeated cross-sectional design was utilized.
  • 18 CP Task Force members completed 39 surveys assessing team culture, trust, and role satisfaction.
  • Engagement activities focused on social participation, leisure, play, education, and work.
  • Descriptive statistics and thematic analysis were performed on survey data.

    • Main Results:

    • Participants reported high levels of satisfaction and engagement with the Task Force.
    • Key themes identified included inclusivity, effective communication, accessibility, and expanded engagement.
    • The occupation-based approach successfully built rapport and a shared sense of purpose.

    Conclusions:

    • Occupation-based engagement strategies can effectively enhance collaboration among diverse stakeholders.
    • This approach is valuable for establishing a CP Task Force to support patient-centered research.
    • Successful collaboration leads to improved rapport and a unified sense of purpose in research initiatives.