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Defining and measuring emotional well-being in intellectual and developmental disabilities: A scoping review
Alecia Mercier1, Jessica Koslouski2, Sandra Chafouleas2
1Department of Psychology, University of Alabama at Birmingham, USA.
Objective:
This review aimed to compile and report on existing emotional well-being (EWB) subjective report measures that have been developed, adapted, or validated on individuals with intellectual and developmental disabilities (IDD).
Method:
Following PRISMA guidelines, this review searched three databases using search terms related to EWB, IDD, and measurement. Two independent reviewers screened titles and abstracts, then reviewed the full texts to include articles that used an EWB-related measure, had an IDD sample, and reported psychometric evidence (% agreement = 97.41, k = 91.92). For each included article, two coders extracted data, and an item analysis was performed to identify EWB and non-EWB items included in each located measure.
Results:
This review identified 33 articles and 20 subjective report measures that were developed, adapted, or validated for individuals with IDD. Most existing measures focus on quality of life rather than treating EWB as a distinct, stand-alone construct, and include only a few EWB items. The included measures were mostly validated on adults and older adults with mild to moderate ID and show varying psychometric evidence across and within measures.
Conclusions:
This review clarifies the current state of EWB measurement in individuals with IDD and provides an organized summary of existing EWB measures. These findings can guide the continued development of EWB research in the IDD population by identifying knowledge gaps and pointing to future directions. Findings also help inform the selection of subjective report measures for assessing EWB in individuals with IDD.
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