Parenting Process in Paediatric Palliative Care for Children With Cancer During Hospitalisation at Home: A
Voskan Kirakosyan1, Matthieu Plichart2, Fatima Laradji2
1CLIPSYD-A2P, Paris Nanterre University, Nanterre, France.
Insights
Mothers experience complex parenting challenges during paediatric palliative care (PPC) at home, involving adaptable parenting styles, constant presence, and guilt. This highlights the need for flexible, responsive home care support for families with children facing life-limiting illnesses.
Area of Science:
- Pediatric Oncology
- Palliative Care Research
- Family Studies
Background:
- Paediatric palliative care (PPC) addresses needs of children with life-limiting conditions.
- Home-based PPC is preferred by families but presents parenting challenges.
- Mothers face difficulties in emotional support, decision-making, and daily care during home hospitalisation.
Purpose of the Study:
- To explore maternal perceptions and experiences of parenting styles.
- Focus on children with cancer undergoing home hospitalisation within PPC.
Main Methods:
- Qualitative research approach.
- Reflexive thematic analysis used for data interpretation.
Main Results:
- Three mothers participated in the study.
- Parenting in PPC involves three stages: variable forms, continuous presence, and guilt as a driving force.
- Parenting styles adapt to the child's suffering and circumstances.
Conclusions:
- Parenting in PPC is complex and requires constant adaptation.
- PPC services must be flexible, responsive, and individualized.
- Tailored support is crucial for children with cancer and their families in home care settings.
Background:
Paediatric palliative care (PPC) addresses the unmet needs of children with life-limiting conditions and their families. In France, PPC for children with cancer is regularly offered in hospital or the home setting, with families often stating a preference for home care. However, hospitalisation at home (HaH) poses significant parenting challenges for mothers, particularly in terms of emotional support, decision-making, and day-to-day care management.
Aim:
To describe maternal perceptions and experiences regarding parenting styles during the home hospitalisation of a child with cancer in PPC.
Design And Methods:
The study employed a qualitative research approach based on reflexive thematic analysis.
Results:
Three mothers (n = 3) were included in the study. The central theme and sub-themes, which are rooted in a causal and hierarchical logic, were identified through reflexive thematic analysis. The main theme-the process of parenting in PPC-has three distinct stages. The first encompasses the different forms of parenting, which vary according to circumstances. The second is the foundation or cornerstone of parenting, namely the continuous presence that remains stable over time. The third stage-and the driving force behind parenting-is the guilt that fuels the process.
Conclusion:
This study highlights the complex nature of parenting in PPC, which is characterised by constant adjustments in response to the child's suffering. PPC should be flexible, responsive, and tailored to the needs of children and their families.
More Related Videos
07:11Assessment of the Efficacy of An Osteopathic Treatment in Infants with Biomechanical Impairments to Suckling
Published on: February 5, 2019
11:50Clinical Practice Protocol of Creative Music Therapy for Preterm Infants and Their Parents in the Neonatal Intensive Care Unit
Published on: January 7, 2020
Related Concept Videos
01:25Continuing Care
00:55Parental Care
01:29Documentation in Long-Term and Home Healthcare Setting
Long-Term Care Facilities
01:27Nursing Ethical Principles II
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
01:21Cancer Survival Analysis
01:13Patient-centered Care