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Cuidando Juntos: A Culturally Adapted Psychoeducation Program for Latino Dementia Caregivers
Maria M Quiñones1, Dolores Gallagher-Thompson2, Jianaa Ghosh3
1Elaine C. Hubbard Center for Nursing Research on Aging, School of Nursing, University of Rochester Medical Center, Rochester, NY, USA.
Objectives:
This study describes the cultural adaptation of Cuidando Juntos (derived from the evidence-based Caregiver Thrive, Learn, Connect) for Latino dementia caregivers, guided by the Cultural Adaptation Behavioral Stage Model, and presents preliminary findings from a Stage Ia trial evaluating preliminary program acceptability.
Methods:
A Community Advisory Board comprising Latinas from three U.S. regions collaborated with a bilingual research team to inform adaptations. All modifications were documented using the Framework for Reporting Adaptations and Modifications - Enhanced (FRAME). A Stage Ia trial of the adapted intervention was conducted with five Latino caregivers. Post-intervention, participants completed a focus group; data were analyzed using rapid qualitative analysis.
Results:
Nineteen adaptations were made: 13 pre-trial and six after trial completion. Adaptations focused on content alignment with cultural values, dementia-specific modules, and goal-setting exercises to increase social connection. Qualitative feedback from participants and facilitators indicated high satisfaction, practical utility, and cultural relevance. Three themes were identified from the qualitative feedback: extending session time, expanding content, and increasing group activities.
Conclusions:
The adaptation process was systematic, community-driven, and culturally responsive. Preliminary findings support the program's acceptability among Latino dementia caregivers.
Clinical Implications:
Cuidando Juntos shows promise as a culturally attuned intervention to enhance caregiver well-being among Latinos.
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