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Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform
Published on: April 12, 2021
[ComPaRe: a platforme where patients become researchers!]
Leslie Toko-Kamga1, Viet-Thi Tran1
1Centre d'épidémiologie clinique de l'Hôtel-Dieu, AP-HP, Paris, France.
Compare:
A PLATFORM WHERE PATIENTS BECOME RESEARCHERS! In France, around 40% of adults live with a chronic disease. The Community of Patients for Research (ComPaRe, https://compare.aphp.fr) is an e-cohort of 58,000 adults living with one or several chronic conditions, in France. These adults complete online questionnaires that capture patient-reported outcome measurements and patient-reported experience measurements on their diseases, treatments, symptoms and evolution. ComPaRe is also a collaborative platform aimed at accelerating research by allowing any public research team in France to use data already collected or to ask for the collection of new data (for example, by adding new online questionnaires). To date, more than 270 researchers use ComPaRe data in more than 95 research projects tackling questions on specific conditions, on chronic conditions in general, or on multimorbidity. Finally, ComPaRe is a community of patients who are involved in research.
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