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The roller coaster of preparation for death
Jhon Henry Osorio Castaño1, Luz Estella Varela Londoño1
1Professor, Nursing Faculty. Universidad of Antioquia. Medellín, Colombia.
Family caregivers preparing for a loved one's death undergo emotional challenges. Despite preparation, many still feel unprepared for the end-of-life transition and subsequent grief.
Area of Science:
- Gerontology
- Psychology
- Sociology
Background:
- End-of-life caregiving is a significant role transition for family members.
- Preparing for a family member's death is a critical aspect of this transition.
Purpose of the Study:
- To explore the lived experiences of family caregivers preparing for the death of a significant other with a chronic illness.
- To understand the multifaceted nature of anticipatory grief and preparation in end-of-life caregiving.
Main Methods:
- Grounded theory methodology was employed to capture the subjective experiences of participants.
- Data collection involved purposive sampling until theoretical saturation was achieved.
- Qualitative data analysis utilized open, axial, and selective coding techniques.
Main Results:
- Four key categories emerged: encounter with the disease, caregiver relationship dynamics, the process of departure, and the development of new meanings.
- Caregivers described their preparation journey as emotionally turbulent, with significant ups and downs.
- Despite efforts to prepare, a substantial number of participants reported feeling inadequately prepared for the death.
Conclusions:
- Anticipatory grief and preparation for death are complex processes for family caregivers.
- While some aspects of preparation can be beneficial, current support systems may not fully address caregivers' needs.
- Further research and support are needed to better equip family caregivers for end-of-life transitions.
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