Patient Expectations of an Autism Diagnosis: A Thematic Analysis

Autism Spectrum Disorder (ASD) diagnoses have increased significantly in recent years, particularly among adults. Many adults seek a diagnosis to gain personal clarity and access to appropriate support, yet their specific expectations and motivations remain underexplored. This study aims to investigate the hopes and expectations of adults referred for an ASD assessment, focusing on their motives and the broader psychosocial implications of a diagnosis.

Sixty adults referred for ASD assessments provided verbal responses to open-ended questions about their expectations, which were recorded by clinicians on paper. Responses were analysed using thematic analysis.

Five major themes were generated: Personal Growth, Explanation for Others, Access to Support, Inclusivity and Acceptance, and Progress in Life Domains. Participants frequently sought self-understanding, social validation, and access to workplace or mental health support.

The study highlights the need for diagnostic processes to address both the emotional and practical expectations of individuals seeking an autism diagnosis, including pre-assessment counselling and post-diagnosis support. The findings contribute to a deeper understanding of adult ASD diagnoses, offering valuable insights for healthcare providers and policymakers.