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Developing a roadmap for consultations on patient-reported outcomes: Insights from the PROCES study
Alizé Rogge1, Felix Fischer2, Sophie Dombrowski1
1Center for Patient-Centered Outcomes Research (CPCOR), Charité - Universitätsmedizin Berlin, Corporate member of Freie Universität, Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Health, Berlin, Germany; Department of Psychosomatic Medicine, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.
Introduction:
Patient-reported outcomes (PROs) are increasingly recognized for their potential to enhance patient-centered and value-based healthcare. However, their implementation remains inconsistent, often hindered by fragmented approaches and a lack of sufficient expertise, leaving stakeholders without adequate practical support. To bridge this gap, a structured framework for PRO consulting services is crucial, yet currently absent in Germany. The PROCES study aimed to develop a roadmap as a first step to enable standardized, context-adaptive, and resource-efficient PRO implementation in both research and clinical care.
Methods:
PROCES employed a mixed-methods approach, including (1) semi-structured qualitative interviews with 28 stakeholders at one university hospital, (2) an anonymous survey of 17 PRO experts across seven European countries, and (3) a two-day on-site workshop with PRO experts to refine findings. Data were analyzed using qualitative content analysis and descriptive statistics.
Results:
The study identified three main challenges: diverse stakeholder needs, increasing demand for consultations, and limited funding. A roadmap was proposed, including a decision-support flowchart for routine care and a filter scheme to manage incoming PRO requests to optimize resource allocation. Additionally, 75 % of surveyed experts supported the establishment of an international PRO network to standardize consultancy practices.
Discussion:
The PROCES findings represent a significant step toward standardized PRO consultancy services in Germany, emphasizing a construct-centered, instrument-independent approach. Future research should evaluate its adaptability and explore its potential as a blueprint for fostering a national PRO approach in Germany.
Conclusion:
This roadmap addresses key barriers to PRO implementation, including unstructured consultations and fragmented efforts, while promoting sustainable and efficient implementation.
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