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Identifying, engaging, and supporting care partners in primary care settings: a portal-based intervention
Catherine M DesRoches1, Deborah Wachenheim2, Jessica Ameling3
1OpenNotes, Division of General Medicine, Beth Israel Deaconness Medical Center, Department of Medicine, Harvard Medical School, 133 Brookline Avenue, HVMA Annex, Suite 2200, Boston, MA, 02215, USA. cdesroch@bidmc.harvard.edu.
A new portal-based intervention successfully identified and engaged care partners in primary care. This approach offers a scalable method to support family caregivers and digitally connect vulnerable patients.
Area of Science:
- Health Services Research
- Digital Health Interventions
- Primary Care
Background:
- Millions of Americans act as care partners, providing essential health and function-related support.
- Care partners are crucial but often unidentified and unsupported within healthcare delivery systems.
Purpose of the Study:
- To evaluate a portal-based intervention designed to identify, engage, and support care partners in primary care settings.
- To assess the feasibility and effectiveness of a digital tool for connecting caregivers with resources.
Main Methods:
- A multi-site study implemented a portal notification system inviting patients to complete pre-visit questionnaires.
- Patients reporting caregiving responsibilities were linked to the Caregiver Intensity Index (CII) assessment and local resources.
- In-clinic materials supplemented the digital intervention, providing access information for the CII.
Main Results:
- Response rates for the pre-visit questionnaire varied by organization (45.9% and 64.9%).
- Approximately 17-23% of respondents reported caregiving responsibilities, with 27-37% completing the CII.
- 61% of patients completing the CII reported moderate caregiving intensity, and 16-19% accessed available resources.
Conclusions:
- This pilot study represents a novel effort to identify and support care partners using a portal-based intervention.
- The findings suggest that a simple portal questionnaire linked to the CII and resources can effectively engage and support care partners with minimal workflow disruption.
- This digital approach may enhance engagement with vulnerable patients and offers a scalable solution for widespread care partner support.
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