Implementing Pediatric Palliative Care in Vietnam: Initial Experiences and Lessons

Miranda R Adelmann1, Bui Thi Thanh Huyen2, Mevhibe Hocaoglu3

  • 1Massachusetts General Hospital (M.R.A.), Boston, Massachusetts, USA.

Insights

The first pediatric palliative care (PPC) program in Vietnam, a low- and middle-income country, successfully provided psychosocial support and pain management to 169 children. This program

Area of Science:

  • Pediatric Palliative Care
  • Global Health
  • Health Services Research

Background:

  • Significant unmet need for pediatric palliative care (PPC) exists globally, particularly in low- and middle-income countries (LMICs).
  • Vietnam, an emerging economy, has a nascent palliative care landscape, highlighting the need for foundational PPC services.
  • The establishment of a PPC program in 2017 at a major Vietnamese children's hospital aimed to address this gap.

Purpose of the Study:

  • To document the development and operational framework of Vietnam's first PPC program.
  • To evaluate the initial scope of services and patient outcomes within this pioneering program.
  • To offer insights for the establishment of similar programs in other LMICs.

Main Methods:

  • Retrospective cross-sectional study design analyzing patients seen by the PPC inpatient consult service over 18 months.
  • Descriptive statistical analysis of patient demographics, clinical profiles, and end-of-life outcomes.
  • Inclusion of all patients aged 0-15.6 years referred to the PPC service.

Main Results:

  • 169 children received PPC consultations, with common diagnoses including cancer, traumatic injury, and congenital syndromes.
  • Psychosocial support was the primary intervention (70%), followed by pain management (28%).
  • Notably, no cancer patients in the study died during hospitalization.

Conclusions:

  • The PPC program achieved high utilization and volume through strategic partnerships, staff education, and cultural adaptation.
  • Early findings suggest potential reductions in end-of-life interventions like chemotherapy and CPR.
  • The program's experiences provide valuable lessons for developing new PPC initiatives in resource-limited settings.
Abstract

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