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Implementing Pediatric Palliative Care in Vietnam: Initial Experiences and Lessons
Miranda R Adelmann1, Bui Thi Thanh Huyen2, Mevhibe Hocaoglu3
1Massachusetts General Hospital (M.R.A.), Boston, Massachusetts, USA.
Insights
The first pediatric palliative care (PPC) program in Vietnam, a low- and middle-income country, successfully provided psychosocial support and pain management to 169 children. This program
Area of Science:
- Pediatric Palliative Care
- Global Health
- Health Services Research
Background:
- Significant unmet need for pediatric palliative care (PPC) exists globally, particularly in low- and middle-income countries (LMICs).
- Vietnam, an emerging economy, has a nascent palliative care landscape, highlighting the need for foundational PPC services.
- The establishment of a PPC program in 2017 at a major Vietnamese children's hospital aimed to address this gap.
Purpose of the Study:
- To document the development and operational framework of Vietnam's first PPC program.
- To evaluate the initial scope of services and patient outcomes within this pioneering program.
- To offer insights for the establishment of similar programs in other LMICs.
Main Methods:
- Retrospective cross-sectional study design analyzing patients seen by the PPC inpatient consult service over 18 months.
- Descriptive statistical analysis of patient demographics, clinical profiles, and end-of-life outcomes.
- Inclusion of all patients aged 0-15.6 years referred to the PPC service.
Main Results:
- 169 children received PPC consultations, with common diagnoses including cancer, traumatic injury, and congenital syndromes.
- Psychosocial support was the primary intervention (70%), followed by pain management (28%).
- Notably, no cancer patients in the study died during hospitalization.
Conclusions:
- The PPC program achieved high utilization and volume through strategic partnerships, staff education, and cultural adaptation.
- Early findings suggest potential reductions in end-of-life interventions like chemotherapy and CPR.
- The program's experiences provide valuable lessons for developing new PPC initiatives in resource-limited settings.
Context:
There remains an enormous unmet need for pediatric palliative care (PPC), especially in low- and middle-income countries (LMICs). Evaluation of existing PPC programs can inform development of emerging programs. In 2017, a PPC program was established at a major children's hospital in Vietnam, a lower-middle-income country where palliative care development is at an early stage.
Objectives:
We describe the development and operations of the first PPC program in Vietnam, and evaluate the program's scope and early outcomes.
Methods:
We conducted a retrospective cross-sectional study of all patients seen by the PPC inpatient consult service within an 18-month period. Descriptive statistics were used to identify trends in demographics, clinical characteristics, and end-of-life outcomes.
Results:
Among 169 children (aged 0-15.6 years) who received PPC consultation, the most common diagnoses were cancer, traumatic injury, and congenital syndromes. Patients were referred by 14 different hospital departments. Psychosocial support was the most common PPC intervention (70%), while pain management was provided for 28% of patients. None of the patients with cancer died in the hospital.
Conclusion:
By partnering with hospital leadership, creating opportunities for staff education, and adapting to the cultural and geographic setting, the PPC team overcame initial challenges to become a widely utilized, high-volume consult service. The PPC program may have reduced use of chemotherapy and cardiopulmonary resuscitation at end of life. The program's strengths, challenges, and experiences may inform the development of emerging PPC programs in other LMICs.
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