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Cerebral palsy (CP) is a major childhood disability with no cure. A new mobile health app was codesigned with families and experts to help prioritize and choose safe, evidence-based CP treatments.

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Area of Science:

  • Pediatric neurology and disability research
  • Mobile health (mHealth) intervention development
  • Family-centered care in chronic childhood conditions

Background:

  • Cerebral palsy (CP) is the most common physical disability in childhood and a leading cause of childhood death.
  • The lifelong, complex nature of CP presents significant challenges for families in navigating treatment options.
  • Existing resources often lack personalization, making it difficult for families to align interventions with their priorities.

Purpose of the Study:

  • To codesign and develop a user-centered mobile health (mHealth) tool for families affected by cerebral palsy.
  • To empower families with evidence-based information for personalized treatment decision-making.
  • To streamline the process of identifying and filtering interventions based on family-specific priorities.

Main Methods:

  • Collaborative codesign approach involving individuals with lived experience of CP, clinicians, software developers, and mHealth researchers.
  • Utilized focus groups and workshops to gather insights and inform app development.
  • Integrated features such as a step-by-step guide, search function, treatment factsheets, and support resources.

Main Results:

  • A functional mHealth aide was successfully codesigned and developed.
  • The app provides a structured approach to treatment exploration and selection.
  • Features are designed to support informed, personalized decision-making aligned with family priorities.

Conclusions:

  • Co-designing mHealth tools with end-users and experts can effectively address complex healthcare navigation challenges.
  • The developed mHealth aide empowers families to make evidence-based, personalized treatment decisions for cerebral palsy.
  • The app will be freely available globally, promoting wider access to decision-support resources for CP management.