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Pain-attributed care task difficulty among dementia caregivers with chronic pain
Shelbie G Turner1, Aryn Lee1, Karl A Pillemer1,2
1Division of Geriatrics and Palliative Medicine, Weill Cornell Medicine, New York, NY, United States.
Frontiers in Pain Research (Lausanne, Switzerland)
|November 21, 2025
Summary
Dementia family caregivers with chronic pain often attribute significant difficulty in daily care tasks to their pain. Black caregivers reported less pain attribution for basic activities compared to White caregivers.
Area of Science:
- Gerontology
- Pain Management
- Caregiver Health
Background:
- Chronic pain is common in dementia family caregivers.
- Caregiver pain can impact caregiving experiences and outcomes.
Purpose of the Study:
- To assess how much dementia caregivers attribute caregiving difficulties to their chronic pain.
- To explore differences in pain attribution based on race.
Main Methods:
- A nationwide sample of 269 caregivers with chronic pain was surveyed.
- Caregivers reported task difficulty and pain's contribution (0-10 scale).
- ANOVA models analyzed differences in pain-attributed difficulty.
Main Results:
- Caregivers averaged 6.81 for basic ADL and 6.49 for instrumental ADL difficulty attributed to pain.
- Black caregivers attributed less difficulty to pain for basic ADLs than White caregivers (p=0.04).
Conclusions:
- Caregiver pain is prevalent and significantly linked to caregiving challenges.
- Racial disparities exist in how caregivers attribute pain to caregiving tasks.
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