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Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform
Published on: April 12, 2021
A user-driven consent platform for health data sharing in digital health applications
Stefanie Brückner1, Akrem Dridi1, Aniruddha Deshmukh2
1Else Kröner Fresenius Center for Digital Health, TUD Dresden University of Technology, Dresden, Germany.
None:
Wearable and health app data hold significant potential for healthcare and research, yet fragmented consent mechanisms create challenges for ethical, transparent, and user-controlled data sharing. We describe a centralised consent management system with a structured approach to standardising health data sharing, ensuring regulatory compliance and improving user autonomy. We describe implementation requirements of the system, emphasising regulatory alignment, involvement of app developers, user empowerment, and governance by neutral public bodies.
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