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A Systematic Review on Children's Participation in Healthcare From a Child's Perspective
Merja Hietanen1,2, Catarina Nahlén Bose2, Anna Stålberg3
1KTH Royal Institute of Technology, Stockholm, Sweden.
Scandinavian Journal of Caring Sciences
|November 26, 2025
Summary
Child participation in healthcare is crucial. Children want to be informed, communicate with professionals, and make decisions, but unfamiliar environments and parental obstruction can hinder their involvement.
Area of Science:
- Pediatric Healthcare
- Child Psychology
- Health Services Research
Background:
- Children possess a right to express opinions on matters affecting them.
- Recognizing children as active participants in healthcare requires understanding their unique perspectives.
- Both the child's viewpoint and the perspective of the child are essential for effective healthcare engagement.
Purpose of the Study:
- To explore child participation in healthcare from the perspective of children aged 3-12 years.
- To identify what constitutes participation in healthcare for children.
- To determine factors that hinder and promote child participation in healthcare settings.
Main Methods:
- Systematic review adhering to Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines.
- Comprehensive database searches in MEDLINE, CINAHL, and Web of Science Core Collection.
- Interpretive data synthesis of 28 included studies.
Main Results:
- Six key themes emerged regarding child participation.
- Children identified participation as deciding actions, communicating with health professionals, being informed, and making decisions.
- Hindering factors included unfamiliar venues and parental obstruction, while security and comfort promoted participation.
Conclusions:
- Child participation in healthcare is contingent on their perception of the situation and opportunities for influence.
- Decision-making in practical matters is developmentally significant for children's skill acquisition.
- A knowledge gap exists regarding preschool-aged children's preferences for healthcare participation.
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