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To Choose a Band-Aid"Children's Preferences for Participation in Health Care Situations: Q Methodology Study
Merja Hietanen1,2, Maksims Kornevs2, Catarina Nahlén Bose1
1Swedish Red Cross University, Hälsovägen 11 C, Huddinge, Stockholm, 141 57, Sweden, 46 08-587 516 60.
Preschoolers prefer shared decision-making in healthcare but want adults to make major choices. Empowering children with age-appropriate options respects their rights and supports child-centered care (CCC).
Area of Science:
- Pediatric Healthcare
- Child Psychology
- Bioethics
Background:
- Child-centered care (CCC) emphasizes children's rights and family roles in pediatrics.
- Involving children in healthcare decisions is a right but not always practiced.
- The United Nations Convention on the Rights of the Child advocates for respecting children's views.
Purpose of the Study:
- To explore participation preferences of 3- to 5-year-old children in healthcare.
- To compare children's, parents', and healthcare professionals' views on child participation.
- To understand how to best involve young children in healthcare decisions.
Main Methods:
- Q methodology was employed to rank 25 statements on child participation.
- Responses were gathered from 12 children, 14 parents, and 12 health professionals.
- Factor analysis identified differing perspectives on participation preferences.
Main Results:
- Three main perspectives emerged: direct communication, understanding/shared decision-making, and responsive/child-led participation.
- Children's separate analysis revealed preferences for inclusion, small choices with outcomes, and trust through familiarity.
- Children value situational control and shared decision-making but defer major decisions to adults.
Conclusions:
- Preschoolers can meaningfully participate in healthcare with age-appropriate support and tools.
- Directly acknowledging children's perspectives is crucial, avoiding adult assumptions.
- Findings support child-centered care principles and the UN Convention on the Rights of the Child.
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