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Coordinating children's palliative care in municipalities: a qualitative study.
Gro Trae1,2, Anette Winger3, Marianne Nordstrøm4,5,6
1Leve NÅ - Paediatric Palliative Care Unit, Frambu Foundation, Sandbakkveien 18, Siggerud, 1404, Norway. gtr@frambu.no.
BMC Palliative Care
|November 28, 2025
Summary
Coordinators for children
Area of Science:
- Pediatric Palliative Care
- Healthcare Coordination
- Municipal Health Services
Background:
- Children with palliative care needs and their families require complex, coordinated care.
- Municipal coordinators aim to ensure holistic care by facilitating inter-service cooperation.
- Limited understanding exists regarding coordinator roles and performance factors in children's palliative care (CPC).
Purpose of the Study:
- To explore coordinators' experiences with factors influencing their work performance in CPC.
- To identify barriers and facilitators to effective coordination for children's palliative care.
Main Methods:
- Semi-structured interviews were conducted with 11 CPC coordinators.
- Reflexive thematic analysis was employed to analyze interview data.
Main Results:
- Coordinators face internal and external barriers impacting holistic care delivery.
- Key themes include insufficient CPC knowledge, conceptual challenges in coordination, fragmented service integration, and the need for tailored approaches.
- Widespread lack of CPC training and underdeveloped municipal systems hinder effective care.
Conclusions:
- Systematic training in CPC for coordinators is essential.
- Enhanced support systems are required to strengthen municipal coordination for children's palliative care.
- Addressing systemic inadequacies is crucial for improving care for these vulnerable families.
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