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A Novel Digital Platform for a Monitored Home-based Cardiac Rehabilitation Program

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Health Technologies and Infrastructures for Supporting Home-Based Pediatric Palliative Care: Scoping Review.

Simen Alexander Steindal^1,2, Anette Winger³, Kirsti Riiser⁴

¹VID Specialized University, Oslo, Norway.

Journal of Medical Internet Research

|December 8, 2025

Summary

Health technologies enhance communication for children needing pediatric palliative care (PPC) at home, primarily using symptom monitoring apps and combined asynchronous/synchronous modes. Further research is needed for diverse diagnoses and infrastructure details.

Keywords:

eHealth family health care technology infrastructure palliative care pediatric pediatric palliative care review telemedicine

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Area of Science:

Pediatric Palliative Care
Health Informatics
Communication Technology

Background:

Families with children requiring pediatric palliative care (PPC) often prioritize home-based care for normalcy.
Challenges exist in communication and follow-up between home-based families and healthcare professionals (HCPs).
Health technologies offer potential solutions for facilitating family-HCP communication in PPC.

Purpose of the Study:

To systematically map existing literature on health technologies and infrastructures supporting communication in home-based PPC.
To identify current trends and gaps in research on technology-enabled communication for pediatric palliative care.

Main Methods:

Scoping review utilizing Arksey and O'Malley's framework.
Systematic database searches (ASSIA, CINAHL, Embase, MEDLINE, PsycINFO, Web of Science) updated to August 2025.
Inclusion of studies on children (0-18 years) needing PPC, their families, and HCPs using health technologies for home-based communication (2018-2025).

Main Results:

41 publications were included, with user-centered design approaches in 29.3%.
Children with cancer were the most studied population.
Symptom monitoring apps (36.6%) and video technology (19.5%) were common, often delivered via combined asynchronous and synchronous modes (46.3%).
Smartphones (36.6%) and internet/Wi-Fi (29.3%) were frequent infrastructures.

Conclusions:

Health technology effectively supports communication for children with cancer in home-based PPC.
Limited research exists for other diagnoses.
Asynchronous and synchronous modes, particularly symptom monitoring apps, are prevalent communication methods.
Health technology infrastructure reporting is insufficient; future research should prioritize user-centered design, including children's perspectives.