Development of a complex intervention to support patients managing cystic fibrosis diabetes
Sarah Collins1, Andrew Jones2, Rita Forde3
1Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, King's College London, London SE1 8WA, United Kingdom; Royal Brompton & Harefield Hospitals, London SW3 6NP, United Kingdom.
Objectives:
Cystic fibrosis diabetes (CFD) is the most common co-morbidity affecting nearly half of adults with cystic fibrosis over 30 years. Contrary to UK clinical guidelines there are currently no self-management education programmes for people with CFD. The aim of this paper is to describe the development of a self-management education programme for people with CFD.
Methods:
this study was guided by the Medical Research Council framework for developing and evaluating complex interventions. Programme development took part in three phases: identifying the evidence base, identifying/developing theory, and modelling process and outcomes. A stakeholder development group, consisting of expert healthcare professionals and people with CFD, were actively involved in the development of this intervention.
Results:
Together with the stakeholder development group, we developed a self-management education programme for people with CFD. The MAGIC (managing abnormal glucose in CF) programme consists of four web-based modules: CF beginner, CF improver, CF advancer and CF wizard and is designed as a patient focussed, staged approach to learning. The MAGIC programme was highly regarded by the participants who reviewed it and all identified technological problems, omissions, errors and comprehension difficulties were addressed before face validity was established.
Conclusions:
The MRC framework was successfully applied to develop the MAGIC programme, a unique web-based self-management education programme for people with CFD. It is grounded in evidence generated from a qualitative systematic review, qualitative interviews and shared experiences of people with CFD and healthcare professional expert in the management of CFD.
Practice Implications:
With improvements in survival observed in the CF population it is imperatives that resources are available to support the effective management of CFD effective. The MAGIC programme was well received by individuals with CFD. It requires further adaptations prior to further studies to demonstrate its efficacy for use in clinical practice.
Related Concept Videos
Cystic Fibrosis: Management
Sinus disease and chronic...
Diabetes: Management and Pharmacotherapy
Insulin remains the cornerstone of treatment for most patients with type 1 and many...
Chronic Pancreatitis II: Collaborative Care
Assessment:
Cystic Fibrosis: Pathogenesis
CF is primarily caused by a genetic mutation in a chromosome 7 gene coding for the cystic fibrosis transmembrane conductance regulator (CFTR) protein. The most common gene mutation leading to CF is the ΔF508 mutation,...
Diabetes Mellitus: Type 2 and Gestational
Chronic Kidney Disease IV: Nursing Management


