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Young People With and Without Intellectual Disability Accessing Mental Health Services: Evaluating Psychosocial
Z Sienna Pan1, Carlo Schuengel2, Barry Coughlan1,3
1Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK.
Young people with intellectual disability (ID) often need mental health support. While some improve, most still face significant challenges post-treatment, indicating a need for ongoing, tailored care.
Area of Science:
- Child and Adolescent Psychiatry
- Intellectual Disability Research
- Mental Health Services Evaluation
Background:
- Growing recognition of psychosocial support needs for young people with intellectual disability (ID).
- Limited robust evaluation of intervention outcomes for this population in mental health services.
- ID frequently co-occurs with other neurodevelopmental conditions and behavioral difficulties (>50%).
Purpose of the Study:
- To evaluate psychosocial functioning outcomes in young people with ID receiving mental health services.
- To compare outcomes between young people with and without ID.
- To identify factors influencing treatment response in young people with ID.
Main Methods:
- Retrospective analysis of 1986 episodes of care for young people with ID and 3968 matched controls (2001-2023).
- Data extracted from electronic health records of South London and Maudsley NHS Foundation Trust.
- Psychosocial functioning assessed using the Children's Global Assessment Scale (CGAS).
Main Results:
- ID was associated with lower CGAS scores at discharge compared to controls.
- Initial CGAS scores predicted discharge scores, but this association weakened with ID and specific comorbidities.
- Young people with severe/profound ID and comorbidities showed greater improvement rates than those with severe/profound ID alone.
- Only 20% of young people with ID achieved clinically significant improvement; 80% remained substantially impaired.
Conclusions:
- Most young people with ID experience persistent functional impairment post-discharge, underscoring complex needs.
- Sustained and targeted mental health support is crucial for this population.
- Further research is needed on specific interventions and treatment trajectories for young people with ID.
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