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This study outlines the co-creation of Italy's first Compassionate Community (CC), a public health approach to palliative care. It details a participatory framework to guide the development and sustainability of CC initiatives.

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Area of Science:

  • Public Health
  • Palliative Care
  • Community Engagement

Background:

  • Healthcare systems increasingly institutionalize death, reducing community support for dying and bereavement.
  • Compassionate Communities (CCs) offer a public health strategy to address this gap.
  • Evidence on CC development and evaluation is limited, especially in Southern Europe.

Purpose of the Study:

  • To describe the co-creation process of the first Italian Compassionate Community (CC).
  • To outline an evaluation framework for guiding the implementation and sustainability of CCs.

Main Methods:

  • A participatory, mixed-methods protocol (InVita! project) involving two phases: Discover and Assess, and Focus and Commit.
  • Phase I utilized interviews, focus groups, field diaries, and a survey on palliative care knowledge, attitudes toward death, and community engagement.
  • Phase II involved participatory workshops and an awareness event to translate findings into a shared mission and actions, with data analyzed using thematic analysis and descriptive statistics.

Main Results:

  • The protocol details a structured, participatory approach for developing Italy's first CC.
  • It integrates qualitative and quantitative methods with public involvement.
  • The study aims to provide actionable insights for scaling CC initiatives and advancing public health palliative care.

Conclusions:

  • This co-creation protocol establishes a foundation for Italy's first Compassionate Community.
  • The proposed evaluation framework will guide future implementation and sustainability efforts.
  • The study contributes to advancing public health palliative care through community-centered initiatives.