Who Participates in Research and Why: Reducing Barriers to Diversifying Samples in Developmental Psychobiology

Area of Science:

• Developmental psychobiology
• Neuroscience
• Community-based participatory research

Background:

• Calls for diversifying research samples in developmental psychobiology are increasing.
• Limited guidance exists on engaging marginalized communities in neurobiological studies.
• Understanding participant priorities is crucial for effective recruitment and retention.

Purpose of the Study:

• To explore motivations of caregivers with children of color in developmental psychobiology research.
• To understand how racial/ethnic identity influences participation experiences.
• To gather feedback on improving representation and study dissemination.

Main Methods:

• Semistructured interviews were conducted with 13 caregivers of children involved in a study on adversity and brain development.
• Participants were primarily Black women.
• Thematic analysis was used to analyze interview data.

Main Results:

• Caregivers participated for reasons including quality time, parenting insights, research diversification, and scientific curiosity.
• Participants reported being mindful of self-presentation to mitigate stereotypes and ensure safety, reflecting historical mistrust.
• Feedback was provided on enhancing representation and disseminating findings.

Conclusions:

• Centering participants of color is vital for improving representation in psychobiological research.
• Addressing historical harm and participant concerns is essential for ethical research practices.
• Participant-generated feedback can guide more inclusive and effective research methodologies.