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General Health-Related Quality of Life in Aphakic Children with Unilateral Congenital Cataract

Fateme Alipour1, Ashkan Mohammadi Kooshki2, Elahe Norouzi3

  • 1Farabi Eye Hospital, Tehran University of Medical Sciences, Tehran, Iran.

Journal of Current Ophthalmology
|December 3, 2025
PubMed

Insights

Congenital cataract significantly impacts children's psychosocial health more than physical health. This highlights the need for psychosocial support and clear information on visual prognosis for affected children.

Area of Science:

  • Ophthalmology
  • Pediatrics
  • Quality of Life Research

Background:

  • Congenital cataract is a significant cause of visual impairment in children.
  • Understanding the impact of congenital cataract on a child's overall well-being is crucial for comprehensive care.

Purpose of the Study:

  • To evaluate the general health-related quality of life (HRQoL) in children diagnosed with congenital cataract.
  • To specifically assess the psychosocial and physical impact of congenital cataract on children's lives.

Main Methods:

  • A cross-sectional study was conducted with unilateral aphakic children aged 2-7 years.
  • The Persian version of the Pediatric Quality of Life Inventory™ (PedsQL™) 4.0 Generic Core Scale was used to assess HRQoL.
  • Data were collected from children referred to the Farabi Eye hospital Contact Lens Clinic in Tehran, Iran.

Main Results:

  • Thirty-eight children (18 girls, 20 boys) participated, with a mean age of 40.05 months.
  • Children scored highest in Physical Functioning (90.29) and lowest in Emotional Functioning (78.15).
  • The PedsQL™ 4.0 total score was 86.89, with a psychosocial health summary score of 83.48 and physical health summary score of 90.29.

Conclusions:

  • Congenital cataract exerts a greater psychosocial impact than a physical one on children, as reported by both children and parents.
  • The findings underscore the importance of providing psychosocial support tailored to children with congenital cataract.
  • Disseminating information regarding the long-term visual prognosis is essential for managing expectations and improving quality of life.
Abstract

Keywords:
Congenital cataractContact lensHealth-related quality of lifePhysical healthPsychosocial healthVisual outcome

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