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A Feasibility Study of a Community-Based Program for Individuals Living With Dementia.
Summary
The Journeying through Dementia program is feasible and acceptable for individuals with dementia in Quebec. It supports continued meaningful activity participation and well-being, with high adherence and retention rates observed.
Area of Science:
- Gerontology
- Neuroscience
- Public Health
Background:
- Meaningful social and daily activities are vital for well-being, yet dementia often leads to reduced participation, social isolation, and loneliness.
- Programs are needed to help individuals adapt post-dementia diagnosis and maintain engagement.
- The Journeying through Dementia (JtD) program aims to foster continued meaningful participation for people with dementia.
Purpose of the Study:
- To assess the feasibility of implementing the JtD program in Quebec.
- To gather preliminary data for future clinical trials.
- To evaluate program acceptability, content/delivery appropriateness, adherence/retention, recruitment strategies, and outcome measures.
Main Methods:
- A single-site exploratory feasibility study following the Medical Research Council (MRC) framework.
- Intervention involved eight 2-hour group sessions at a research center.
- Data collection and analysis were guided by the MRC framework.
Main Results:
- Three participants completed the program, reporting benefits and finding content/delivery appropriate.
- High adherence and retention rates were observed.
- Care partners showed interest and provided valuable feedback; insights for recruitment and outcome measures were gathered.
Conclusions:
- The JtD program is feasible and acceptable within the Quebec context.
- Findings support the program's potential to enhance well-being for individuals with dementia.
- Considerations for future large-scale evaluations were identified.
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