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Related Experiment Video

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Connecting communities across the globe: Atlas protocol.

Rebecca Newell1, Juan Esteban Correa-Morales2, Vilma A Tripodoro3,4

  • 1Public Health Department, Brighton and Sussex Medical School, UK.

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Summary
This summary is machine-generated.

This study protocol outlines the first global atlas of compassionate communities, aiming to map their locations and understand their impact. The atlas will increase visibility and support research for community-led palliative care worldwide.

Keywords:
community engagementcompassionate communitiespalliative careprimary palliative carepublic health palliative care

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Area of Science:

  • Public Health
  • Palliative Care
  • Community Health

Background:

  • Universal palliative care access is a global public health priority, particularly in low- and middle-income countries.
  • Compassionate communities offer community-led responses to dying, death, and grief, aiding palliative care provision.
  • These communities are often underrepresented in academic literature and national strategies, hindering their visibility and evaluation.

Purpose of the Study:

  • To develop the first global atlas of compassionate communities.
  • To map the locations, structures, activities, and impacts of these communities.
  • To increase understanding and recognition of their role in primary palliative care.

Main Methods:

  • A participatory methodology was employed, involving global participants sharing their experiences.
  • A diverse steering committee and global experts guided the survey's design, validation, and piloting.
  • The validated survey captures data on community location, aims, evaluation, challenges, and impact.

Main Results:

  • The study protocol details a method for mapping the compassionate community landscape.
  • The developed survey has met content validity thresholds, ensuring reliability.
  • Dissemination strategies include global networks, social media, and snowball sampling.

Conclusions:

  • This protocol addresses a critical gap in Public Health Palliative Care literature.
  • The resulting atlas will enhance the visibility and recognition of global compassionate communities.
  • It will foster partnerships and future research, supporting community-based palliative care efforts.