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Lessons Learned from Co-Designing a Digital Health App for Foster Youth: Development and Usability Study.

Johanna B Folk1, Juan Carlos Gonzalez1,2, Margareth V Del Cid1

  • 1Department of Psychiatry and Behavioral Sciences, School of Medicine, University of California, San Francisco, 1001 Potrero Ave, San Francisco, CA, 94110, United States, 1 415-602-9521.

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Summary
This summary is machine-generated.

Co-designing behavioral intervention technologies (BITs) with foster youth is key to addressing their unmet mental health needs. This approach led to FostrSpace, a tool that increased access to vital health and social resources for young people.

Keywords:
adolescentapp developmentbehavioral health appbehavioral intervention technologyco-designfoster caremHealthmental healthsocial determinants of healthyoung adult

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Area of Science:

  • Digital Health
  • Human-Computer Interaction
  • Public Health

Background:

  • Foster youth face significant barriers to accessing mental health and substance use services.
  • Behavioral intervention technologies (BITs) offer a promising avenue to overcome these barriers, especially when co-designed with users.

Purpose of the Study:

  • To describe the 31-month co-design process of FostrSpace, a BIT for foster youth.
  • To provide a roadmap for co-designing BITs with minoritized youth to address social determinants of health and improve behavioral health care access.

Main Methods:

  • The co-design process involved five phases: design, development, launch, testing, evaluation, and iterative refinement.
  • FostrSpace usage data were collected from 40 youth to inform iterative refinement.

Main Results:

  • Youth sought resources for emotional wellness (72.5%), healthcare (42.5%), housing (40%), and other social determinants of health.
  • Fourteen youth completed the emotional wellness questionnaire, and seven initiated behavioral health services via FostrSpace.

Conclusions:

  • Participatory co-design with minoritized youth requires careful attention to power dynamics and psychological safety.
  • Lessons learned include balancing privacy with usability, selecting knowledgeable development partners, and integrating BITs into existing care systems.