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Nothing About Us Without Us in the First 1000 Days: Developing Inclusive Early Years Support With Disabled Families.

Angharad E Beckett¹, Neve McLean², Anna Miller¹

¹School of Sociology and Social Policy, University of Leeds, Leeds, UK.

Sociology of Health & Illness

|December 14, 2025

Summary

Disabled families co-designed an early years program, highlighting how ableism creates barriers. Their solutions promote fundamental transformation for equitable health and social care support.

Keywords:

co‐design disability early years human rights inclusion institutional ableism parenting social model

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Area of Science:

Health Services Research
Social Care Policy
Disability Studies

Background:

Existing early years programs in health and social care often have limitations for disabled families.
Ensuring disability inclusion from the program's inception is crucial for enhancing caregiver and infant well-being.

Purpose of the Study:

To co-design a universal early years program with disabled families.
To identify and address exclusionary practices within health and social care provision.
To develop practical design principles for inclusive family support.

Main Methods:

Conducted intensive co-design workshops with 11 disabled families.
Employed barrier mapping and solution generation activities.
Utilized thematic analysis to identify key domains of exclusion and inclusion.

Main Results:

Co-designers identified four key domains of exclusionary practices: physical accessibility, program flexibility, content inclusivity, and professional practice.
Institutional ableism manifests through inaccessible venues, rigid policies, and dismissal of parental expertise.
Proposed solutions included accessible venues, flexible attendance, strength-based content, and validated parental expertise.

Conclusions:

Meaningful inclusion necessitates dismantling exclusionary systems rather than retrofitting them.
Co-designers' insights offer a critique of institutional ableism and practical principles for inclusive services.
Participatory approaches can foster equitable family support by generating alternative possibilities.