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A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
Published on: January 12, 2018
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Legal and Ethical Issues in Periviable Decision-Making in the Current Moment.
Elizabeth Tobin-Tyler1, Brownsyne Tucker Edmonds2,3, Erika Rose Cheng2
1Health Services, Policy and Practice, https://ror.org/05gq02987Brown University School of Public Health, United States.
Summary
Navigating medical decisions for periviable births (20-25 weeks gestation) is complex. Current laws prioritize life but neglect diverse families and parental autonomy, especially post-Dobbs.
Area of Science:
- Neonatal Medicine
- Medical Ethics
- Health Law
Background:
- Periviable births (20-25 weeks gestation) pose significant survival and morbidity challenges.
- Medical decision-making for these infants involves complex ethical and legal considerations.
- Existing legal frameworks struggle with evolving family structures and parental autonomy.
Purpose of the Study:
- To outline the ethical and legal landscape of parental decision-making for periviable infants in the US.
- To analyze the impact of current laws and the post-Dobbs environment on these decisions.
- To advocate for legal reforms supporting patient-centered care.
Main Methods:
- Review of federal and state laws concerning periviable births and parental rights.
- Analysis of ethical principles (sanctity of life vs. quality of life).
- Examination of the influence of recent legal changes, including abortion bans.
Main Results:
- Current laws often adopt a vitalist approach, prioritizing life preservation over quality of life.
- Laws inadequately address non-traditional family structures, complicating decision-making.
- Post-Dobbs abortion bans have further restricted parental and clinician autonomy.
Conclusions:
- Legislative reform is needed to include inclusive definitions of legal parenthood.
- Legal frameworks must accommodate periviable birth complexities while respecting autonomy.
- Evidence-based, patient-centered decision-making requires updated legal and ethical support.
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