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Unlocking insights: general practice staff perspectives on sharing general practice data for research - a scoping
Heidi Green1, Belinda Fabrianesi2, Lucy Carolan2
1Australian Centre for Health Engagement, Evidence and Values, School of Social Science, University of Wollongong, Wollongong, New South Wales, Australia. hgreen@uow.edu.au.
BMC Primary Care
|December 17, 2025
Summary
General practice staff support data sharing for research, provided privacy and ethical safeguards are in place. Future efforts must ensure inclusivity, especially for vulnerable populations, to enable equitable data sharing.
Area of Science:
- Health Services Research
- Data Governance
- Primary Care
Background:
- General practice data is valuable for research, policy, and understanding healthcare delivery.
- Ethical and practical challenges of data sharing in general practice require further investigation.
- This review explores general practice staff perspectives on research data sharing.
Purpose of the Study:
- To investigate general practice staff views on sharing general practice data for research.
- To identify barriers and facilitators to data sharing in primary care settings.
Main Methods:
- A scoping review following JBI methodology and PRISMA-ScR guidelines.
- Searched MEDLINE, Scopus, PsycINFO, and grey literature.
- Included nine studies from Australia and the UK, analyzed via narrative synthesis.
Main Results:
- Staff generally support data sharing for public benefit and improved healthcare.
- Support is contingent on strong privacy, ethical governance, and practical assistance.
- Concerns include patient privacy, commercialization, trust, consent models, and workload; consent views are divided.
- No studies addressed perspectives of vulnerable populations.
Conclusions:
- General practice staff are willing to share data when ethical and practical safeguards exist.
- Future initiatives need transparency, trust, and inclusivity, especially for vulnerable groups.
- Prioritizing these elements ensures equitable and sustainable data sharing.
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