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Co-designing narrative resources for implementation in lower limb amputation rehabilitation.

Fiona Leggat1, Ross Wadey2, Melissa Day3

  • 1Population Health Research Institute, School of Health and Medical Sciences, City St George's University of London, Tooting, London, UK.

Disability and Rehabilitation
|December 19, 2025
PubMed
Summary

Co-designing narrative resources for major lower limb amputation (MLLA) rehabilitation improved patient and healthcare professional engagement. These resources offer validation and support well-being during recovery from amputation.

Keywords:
Storiesamputationdigital healthimmersionimplementation scienceparticipatory research

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Area of Science:

  • Rehabilitation Medicine
  • Health Psychology
  • Co-design Methodology

Background:

  • Narratives are crucial for processing illness and trauma, offering validation and support.
  • Previous research developed five narratives for major lower limb amputation (MLLA) but lacked practical application.
  • Bridging the research-practice gap in MLLA rehabilitation requires accessible narrative resources.

Purpose of the Study:

  • To demonstrate an immersive co-design process for developing narrative resources.
  • To create narrative resources for individuals undergoing MLLA rehabilitation.
  • To develop resources for allied healthcare professionals (AHPs) involved in MLLA rehabilitation.

Main Methods:

  • A 27-month co-design process was commissioned by an NHS MLLA rehabilitation centre.
  • An iterative, three-stage immersive process involved patients, therapists, and managers.
  • Co-design activities included immersion sessions and workshops.

Main Results:

  • Two narrative resource packages were co-designed: one for patients, one for new AHPs.
  • End-users perceived narratives as authentic and awareness-raising.
  • Key factors for implementation included readiness and existing knowledge.

Conclusions:

  • Co-designed narrative resources can enhance MLLA rehabilitation.
  • The importance of contextualizing narratives in clinical practice is highlighted.
  • Challenges in sharing sensitive narratives within clinical settings were identified.