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Centering Community Engagement in a Hypertension Clinical Trial: Strategies to Engage Rural Black Patients in the
Stephanie Hart1, Doyle M Cummings2,3, Monika M Safford4
1Nursing Fellow, National Clinician Scholars Program (NCSP), Duke Clinical and Translational Science Institute, Duke University School of Nursing, Durham, NC, USA.
Insights
This study details strategies for recruiting and retaining rural Black Americans with uncontrolled hypertension in clinical trials. Lessons learned aim to improve engagement with under-represented communities in health research.
Area of Science:
- Clinical Trials
- Health Disparities
- Community-Engaged Research
Background:
- Rural Black Americans face high hypertension prevalence and complications.
- These populations are often excluded from clinical trials.
- Effective recruitment and retention strategies are crucial.
Purpose of the Study:
- To describe experiences supporting recruitment and retention of rural Black patients with uncontrolled hypertension.
- To share challenges and lessons learned from a cluster-randomized clinical trial.
- To inform future research engagement with historically excluded communities.
Main Methods:
- Community-engaged research principles were foundational.
- Strategies focused on trust-building, transparency, and shared leadership.
- A cluster-randomized clinical trial design was employed.
Main Results:
- The report focuses on enrollment and engagement experiences.
- Specific challenges encountered during recruitment and retention are discussed.
- Lessons learned provide insights for future community engagement.
Conclusions:
- Authentic engagement requires long-standing community partnerships.
- Trust, transparency, and shared leadership are key to success.
- Future research must actively involve under-represented communities as partners.
Abstract:
Black Americans residing in rural communities are often excluded from clinical trials for hypertension, despite having a high prevalence of the disease and frequent complications. This report describes our research team's experience to support recruitment and retention of rural Black patients with uncontrolled hypertension in the southeastern United States in a cluster-randomized clinical trial. While the focus of this report is on enrollment and engagement, the strategies employed were grounded in long-standing community-engaged research efforts and guided by principles of trust-building, transparency, and shared leadership. We share the challenges encountered and reflect on lessons learned to inform future approaches that authentically engage historically excluded and under-represented communities as active partners in research.
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