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How do youth with Delayed Sleep-Wake Phase Disorder experience a chronobiological treatment protocol? An interview

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Young adults with Delayed Sleep-Wake Phase Disorder (DSWPD) found bright light and melatonin treatment beneficial, despite its demands. Tailoring the protocol improved adherence and overall satisfaction with advancing their sleep-wake rhythm.

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Area of Science:

  • Chronobiology
  • Sleep Medicine
  • Psychology

Background:

  • Delayed Sleep-Wake Phase Disorder (DSWPD) is characterized by a persistent shift in the circadian sleep-wake cycle.
  • Timed bright light and melatonin are established treatments for advancing the sleep-wake rhythm in DSWPD.
  • Treatment adherence can be challenging due to the demanding nature of the protocol.

Purpose of the Study:

  • To explore the subjective experiences of young adults undergoing treatment for DSWPD.
  • To understand how patients perceive the benefits and costs associated with the treatment protocol.

Main Methods:

  • Semi-structured interviews were conducted with 11 young adults diagnosed with DSWPD.
  • Participants rated the treatment's worth on a scale of 0-100.
  • Qualitative thematic analysis was used to analyze interview data.

Main Results:

  • The mean rating for treatment worth was 72.5, indicating perceived benefits outweighed costs.
  • Three themes emerged: benefits (advanced circadian phase, improved daily life, self-evaluation), costs (adherence challenges, circadian shifts), and improving the cost-benefit ratio.
  • Participants identified gradual tailoring of the treatment and routines as key to reducing costs.

Conclusions:

  • All participants found the treatment worthwhile, emphasizing the need for individual tailoring to minimize effort.
  • Treatment benefits extended beyond sleep, positively impacting self-perception and social beliefs.
  • Personalized adjustments to the treatment protocol are crucial for successful management of DSWPD.