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Supporting Continued Employment for Individuals With Young-Onset Dementia: Insights From a Qualitative Study Into Key
Bo Smeets1, Kirsten Peetoom2, Niels Janssen1
1Department of Psychiatry and Neuropsychology / Alzheimer Centre Limburg, Mental Health and Neuroscience Research Institute, Maastricht University, Maastricht, the Netherlands.
Dementia (London, England)
|December 23, 2025
Summary
Continued employment for individuals with young-onset dementia is possible with employer and healthcare support. Key factors include awareness, communication, and collaboration to overcome barriers like stigma and knowledge gaps.
Area of Science:
- Neuroscience
- Occupational Health
- Social Sciences
Background:
- Young-onset dementia (YOD) significantly impacts work performance and job security.
- Support from employers, occupational physicians, and healthcare professionals is crucial for continued employment in YOD.
Purpose of the Study:
- To explore stakeholder perspectives on supporting continued employment for individuals with YOD.
- To identify facilitators and barriers to workplace retention for employees with YOD.
Main Methods:
- 18 semi-structured interviews were conducted.
- Two focus group discussions were held to complement interview data.
- Inductive thematic content analysis was applied to all collected data.
Main Results:
- Stakeholder collaboration, knowledge sharing, and communication are vital for YOD employment support.
- Facilitators include YOD awareness, proactive organizational support, and timely professional intervention.
- Barriers include stigma, knowledge deficits, and legal constraints, which can be mitigated by enhanced collaboration and guidelines.
Conclusions:
- Continued employment for YOD is feasible with early recognition, workplace adjustments, and stakeholder collaboration.
- Raising awareness, proactive organizational attitudes, and open communication are essential for success.
- Further research and support tools are needed to enhance social health and employment for individuals with YOD.
Keywords:
continued employmentdementia healthcare professionalsemployersoccupational physiciansperspectivessupportyoung-onset dementiaMore Related Videos
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